The most vital members of our research team are our participants. Your invaluable contributions make it possible for the future developments in Health Care, that will help generations to come.
We would like to thank all our participants for their continued engagement in research and we also want to share with you how your contributions have made a difference.
This page is therefore dedicated to sharing research outcomes and results from studies that our team have previously worked on, and where Leicestershire Partnership NHS Trust made a significant contribution.
Leicestershire Adult Eating Disorders Service took part in the NIHR-funded TRIANGLE study which has been running from 2017 to 2020; the service were second nationally for recruitment.
The study is a multi-centre randomised controlled trial to examine whether the addition of a patient and carer skill sharing intervention (ECHOMANTRA) improves long-term patient well-being following hospital treatment for anorexia nervosa. The study is still delivering support to patients and collecting data, the first publication is expected in 2020.
Journeying through Dementia was a large-scale research study that aimed to find out whether attending a 12-week community programme had a positive impact on the quality of life for people who are living with the early stages of dementia.
Those who took part in this research will receive a Trial Results Summary Leaflet from the study team.
To find out more regarding the intervention, trial and results of this study, please follow the link below:
Journeying through Dementia Clinical Trial Summary and Results Film
What was this research about and why was it important?:
An estimated 1 in 14 people over the age of 65 living in the UK have dementia. Although we are yet to find a cure, early diagnosis and interventions can allow patients to live independently for longer. Therefore, early and efficient diagnosis is one of the most important tools in a clinician’s arsenal.
However, diagnosis can be complicated by the fact that that many types of dementia exist and, the specific pattern of damage within a person’s brain will affect how individual symptoms present. Therefore, any test needs to be able to detect and pinpoint a range of symptoms.
Being familiar with a range of clinical tests used to diagnose dementia, Professor Alistair Burns and his team noticed a problem with these existing tools. Not only were the majority subject to copyright, thus requiring payment for use, no single test combined measures of cognition (memory, visual and spatial function, language and fluency) with measures of executive function (social functioning, travel, self-care and safety in the home).
It was this observation that sparked the idea for Free-Cog; a free-to-use assessment tool which combined tests of cognition and executive function into one global test, designed to be suitable for use in a busy clinical environment.
What did our patients say about taking part?:
Patients and members of the public were involved in developing this project at a very early stage. Professor Burn’s team worked with the Alzheimers Society Research Network to ensure that the format and wording of the test questions were tailored to patient’s needs.
This involvement appeared to be beneficial, since many patients who were involved in trialing out the Free-Cog assessment commented that they liked its ‘conversational style’ and that they felt more relaxed and confident taking this test than some other more commonly used assessments.
“It didn’t feel like an examination, it felt more like a TV quiz and was much better than the other assessment”
“My father seemed more visibly relaxed completing the Free-Cog study then the previous assessment”
What did the study find?
In total, 956 participants from across the UK took part in trialing the Free-Cog assessment. Many patients fed back to our research staff saying they found the experience interesting and enjoyable.
The study showed that Free-Cog was similar to existing, routinely used, tests in its ability to differentiate between patients with Mild Cognitive Impairment (MCI) and Dementia and between healthy patients with no cognitive diagnosis and those with MCI.
Despite some limitations, including a lack of specificity inherent in being a global scale and minimal written instructions, designed to make it easier for busy clinicians but which may be less acceptable for inexperienced staff; the Free-Cog assessment performed well and may have a number of benefits over current routinely used tests.
How will it improve services in the future?:
This tool is free to use, measures both cognitive and executive functioning and is less likely to be perceived as a ‘test’ by patients meaning overall performance may be less impacted by patient anxiety.
Combine these benefits with the finding that its performance is on par with other more commonly used tests and that it has a telephone consultation version (Tele Free-Cog) which also discriminates between patient groups, this makes Free-Cog a particularly powerful tool which may also adapt well to non-face-to-face setting.
The Free-Cog will remain freely available in perpetuity. It is available to anyone interested in trialling it, translating it or validating it.
This was a multi site survey study to assess what cultural adaptations are made by clinicians in different settings. The aims were to identify what interactions that are culturally influenced are used by clinicians in England and how these interactions are experienced by patients who are from a Non White Western Background.
A total of 2805 participants took part in the study between 1 April and 30 June 2018 (87% Clinicians and 13% Patients).
Participants generally came from NHS community mental health teams or inpatient services. The most common role for clinicians was that of nurse with most clinicians working 1–5 years in their role. Most patients had been with services for over 10 years. In terms of gender, those that completed the questionnaires were mainly female clinicians and male patients (55%).
The results of this study are in line with other research done previously showing a disconnect between how clinicians rate their communications skills and how patients report as not satisfactory. This study shows that within the sphere of cultural competence the clinicians assessment of their perceived cultural competence and the patients view that their cultural needs are not being met points to a disparity between the two view points.
This research was funded by the Pakistan Association of Cognitive Therapists (PACT) and sponsored by Southern Health NHS Foundation Trust. The Chief Investigator was Professor Shanaya Rathod
International Review of Psychiatry Article