The combined Families, Young People and Childrens, and Learning Disability and Autism Directorate provides a wide range of services to local people across Leicester, Leicestershire and Rutland and is seeking three people with lived experience of their services to work alongside our group managers and senior clinicians in the development of their teams.  The post holders will be supported to work with their team in monthly planning and assurance meetings and will be enabled to work closely on specific projects agreed with the Head of Service responsible. The roles will be key to ensuring the lived experiences of a wide range of local people shape the teams’ plans and the services offered. Hours per week – c. 8 hours per week.

We are recruiting for Lived Experience Partners for our Families, Young People and Children and Learning Disability and Autism Services.  We are looking specifically for people who have an interest and experience of the following areas:

  • Special Educational Needs and Disabilities
  • Health Inequalities
  • Learning from Lives and Deaths – People with a Learning Disability and autistic people (LeDeR)

Special Educational Needs and Disabilities

If you are a parent or carer of a child or children and young people who have Special Educational Needs and Disabilities, we are keen to hear from you.

Key aspects of the role will be to work with our services, utilising your own lived experience to support transformation plans around SEND covering four key areas.

  1. SEND integration project – linking with schools and identifying improvements made from new training offer.
  2. Redesign of Education Health and Care Plans and Annual Reviews – previous experience of this process would be beneficial.
  3. Care navigation and SEND – working with CN team as they have links with most agencies so can support lived experience partner in their role.
  4. Improved access for children with high priority clinical needs – knowledge of FYPC LDA services in Group 2 – SALT, therapies, Healthy Together

You will also be supporting in the collection of feedback from parent/carers in several settings – schools, clinics, children centres.

Health Inequalities

We know that our service users are not representative of the community we serve. As a directorate we are reviewing how we can ensure our services are accessible to all. We would like to work with a Lived Experience Partner on this. The following would skills/interest would be beneficial.

  • Interest/knowledge of health inequalities
  • Local knowledge of the different communities across Leicester Leicestershire & Rutland
  • Creative thinker: how can services reach those that are marginalised/hard to reach?
  • Awareness/understanding of vulnerable/marginalised groups.
  • Vaccination uptake across LLR for CYP

Learning from Lives and Deaths – People with a Learning Disability and autistic people (LeDeR)

Research has shown that on average, people with a learning disability and autistic people die earlier than the general public, and do not receive the same quality of care as people without a learning disability or who are not autistic.

We want to change this. LeDeR reviews deaths to see where we can find areas of learning, opportunities to improve, and examples of excellent practice. This information is then used to improve services for people living with a learning disability and autistic people.

Experience of the following services may be helpful for any of these roles







Early Help / Children and Families Wellbeing Service

Mental Health in Schools team

ADHD solutions

Autism Outreach

Local Offer

Therapy services

Please note that applications have now closed for these roles.

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