Patient/Carer Support Groups

For parents of children with a disability

Listening Ear

Listening Ear free 1:1 telephone appointments giving advice for parents of disabled children who are finding it difficult to cope emotionally – service endorsed by NHS. Helpline: 0808 808 3555.

Mencap

Online community for parents to share experiences/provide peer support.

Scope

Website with tips and links about coping strategies.

Autism.org

Offer a confidential parent-to-parent emotional support line.

Leicestershire County Council Support Directory

Contains links to local support groups.

Generic mental health/emotional support

Samaritans

Tel support line: 116 123.Email support: jo@samaritans.org

Mind (non-urgent support)

Tel support: 0300 123 3393. Email support: info@mind.org.uk

Parents’ Stay Well Guide for Children Aged 0-9

This new guide, the Parents’ Stay Well Guide for Children Aged 0-9 Years, gives you all the information you need to get the right care for the most common health worries for children:

  • Fever
  • Head injury
  • Diarrhoea and vomiting
  • Breathing issues

Some simple home-based self-care could save you from hours in a busy GP or hospital waiting room. By saving the guide to the home-screen of your phone/tablet/PC you can get to the right care advice for your child at the right time. We really hope you find this guide useful.

Resources

We have various care pathways for children accessing our service:

Useful contact numbers

Opcare

Wheelchair services and orthotics

Tel: 0116 296 8400

www.opcare.co.uk/nhs-clinic-locations/leicester

Clark and Partners

Wheelchair repairs.

Tel.: 0116 260 0055

E-mail: leicservice@clarkandpartners.co.uk

NRS (Nottingham Rehab Supplies)

Delivery, collection and repair of therapy equipment provided by Occupational Therapy and/or Physiotherapy. If equipment needs adjusting for growth or your child’s needs change, please contact the therapy service directly.

Tel.: 0844 893 6373

E-mail: enquiries@lr.nrs-uk.net

Website: www.nrshealthcare.com/index.php/about-us/our-locations

Social Services

Social Services – minor adaptations team

Household minor adaptations, e.g. stair rails, grab rails, concrete half steps (usually referred by OT)

County Tel.: 0116 305 9235/0116 3050005

E-mail: childrensduty@leics.gov.uk

Website: https://www.leicestershire.gov.uk/education-and-children/special-educational-needs-and-disability/help-at-home/equipment-and-home-adaptations-for-disabled-children

City Tel : 01164546182

Disabled Childrens Team

Self refer to request assessment for housing adaptations

County Tel : 01163050005

City Tel: 01164541004

Rutland Tel: 01572758341

In car safety centre

Car seats for children with special needs, loan schemes and purchase available

Nearest branch – Milton Keynes

Tel.: 01908 220909

E-mail: info@incarsafetycentre.co.uk

Website: www.incarsafetycentre.co.uk

 Leicester City Council Local Offer:

https://families.leicester.gov.uk/send-local-offer/

Leicestershire County Council Local Offer:

https://www.leicestershire.gov.uk/education-and-children/special-educational-needs-and-disability

SEN Direct:

https://www.sendirect.org.uk/

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