Autistic people have differences with things like communication and how they respond to the sensory environment.  So, to get the best out of hospital visits, they may need reasonable adjustments.

This means they may need hospital staff to make some changes.  Such changes can help ensure clear communication – and help the person to:

  • feel safe and comfortable
  • tolerate any medical procedures.

Click here for general information about common challenges autistic people face during health care appointments.  Here you will also find information about what sorts of things can help.  You will also find links to resources about making and asking for reasonable adjustments

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Advice and support for parents and carers of autistic children visiting University Hospitals Leicester (UHL)

The UHL website has comprehensive general information for parents and carers of autistic children visiting hospital.

You can find this here:

https://www.leicestershospitals.nhs.uk/aboutus/our-hospitals/childrens-hospital/children-and-young-people-with-autism/

 

This page specifies what UHL hospitals advise when visiting their hospitals – and what support they can offer:

https://www.leicestershospitals.nhs.uk/aboutus/our-hospitals/childrens-hospital/children-and-young-people-with-autism/our-offer/

If you are a parent or carer whose autistic child needs support during a hospital visit, you can contact the Children’s Learning Disability and Neurodiversity Specialist Nurse on this number: 07484411873

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Advice for autistic adults visiting University Hospitals Leicester (UHL)

UHL have a team of Acute Liaison Nurses who offer support for adults who are diagnosed with both a learning disability and autism.  This team can be contacted here:

Email: learningdisabilities@uhl-tr.nhs.uk

Phone: 0116 250 2809

UHL do not currently have a support service available for adults who do not have a learning disability.

Autistic adults without a learning disability are advised to do the following

  • make a list of what you might find difficult in relation to your hospital visit
  • make a list of what reasonable adjustments you would find helpful
  • consider putting this into a health passport
  • contact the department who have arranged the appointment
    • do this in in plenty of time before the appointment, so that staff have time to make any necessary arrangements
  • ask to discuss your needs – and negotiate the best way to meet these

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For our directory of health related resources and services, please click here

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