Why do we need a research register?

What is the research register? 

We are keen to share research opportunities with those who are interested in taking part in research related to autism. To help with this we are building a research register. The register will hold the names of people interested in taking part in research related to autism. 

What autism research are we doing in LPT? 

In LPT we are currently running the STRATA study. This study aims to find out if the medication sertraline is effective for treating anxiety in adults with a diagnosis of autism.

Many autistic adults experience anxiety and many find it very difficult to deal with. Medications like sertraline are often prescribed for anxiety in autistic adults but whether they work, and what their side effects are in the autistic population is not well known. By taking part in this study, you will be helping to inform whether autistic adults who experience anxiety should be prescribed sertraline.

You can find out more about the STRATA study here: https://strata.blogs.bristol.ac.uk/ or you can have a look at the Participation Information Leaflet for the study below:

STRATA Participant Information Leaflet
STRATA Participant Information Leaflet (Easy Read)

We will soon be opening another study offering guided self-help therapy for autistic adults experiencing depression. We will update this webpage with more information once this study is open in LPT.

Who can join the research register?

We would like to invite adults (over the age of 18) with a formal diagnosis of autism to join the research register. 

At this moment in time we are not running any studies for people without a formal diagnosis of autism. Our portfolio of autism research may change over time, this will be reflected on this website.

How to join the research register? 

If you are interested in joining the Autism Research Register, please complete the registration form below. After receiving your registration form you will receive an email confirmation from lpt.researchdelivery@nhs.net. Approved members of the Research & Development (R&D) Team will then be in touch on your preferred method of contact. 

Before joining the research register, you may choose to discuss with your family and/or friends about your decision to join and the studies LPT are currently running. If you have any questions you can refer to the ‘Frequently Asked Questions’ on this page. Alternatively, you can contact the Research and Development team (lpt.researchdelivery@nhs.net), and we will answer any questions you might have. You can unsubscribe from the research register at any time by visiting this page.

I would like to join the Autism research register
What is your age?
Preferred method of contact
Do you give consent for a member of the research team to leave you a voicemail and/or send you a text message if they are unable to reach you via phone?
Do you have a formal diagnosis of autism?

Valuing equality and diversity in research

These questions will not impact on your eligibility to take part in research
What are your preferred pronouns?

Do you consider yourself to have a disability?

 

Frequently Asked Questions

  1. Will taking part in the research affect the care I am currently receiving or may receive in the future?
    No. Taking part in research will not affect the care you are currently receiving or may receive in the future.
  2. Do I have to take part?
    No. Taking part in research is your choice.
  3. What if I decide I no longer want to take part?
    You have the right to withdraw from the research study at any time, and this will not affect the care you are currently receiving or may receive in the future.
  4. Where is the Research Register held?
    The research register will be held on a secure computer drive. The database will be password protected.
  5. Who will have access to the Research Register?
    Only the members of the Research and Development team will have access to the register.
  6. How long will my data be held?
    After 12 months (annually) we will email people who have signed up to ask if you would like to stay on the register. You can get in touch with us at any time if you would like your details removed from the register or complete the form here, you do not need to wait until we contact you.

If there is anything else you would like to find out before joining the register please contact the Research and Development team on lpt.researchdelivery@nhs.net

Under GDPR, we are asking to hold your personal identifiable information, such that this will be legally processed where individuals on the register may be eligible for a study or trial researching autism – in order to ascertain this, we would need to ask further screening questions, check your current status, and also permission to look at your medical records. We will hold your personal information to communicate with you about developments in autism research and opportunities to participate in autism research studies. 
We will review the research register on an annual basis to check that you are happy to remain on the Autism Research Register. If you choose to withdraw your details from the research register please click here or contact the Research Team on 0116 295 7684 or lpt.researchdelivery@nhs.net
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