Why do we need a research register?
- One in every hundred people are on the autism spectrum https://www.autism.org.uk/advice-and-guidance/what-is-autism
- What does Research aim to do?
- Research will allow us to learn more about autism, which may lead to better care and an increased understanding of autism.
What is the research register?
We are keen to share research opportunities with those who are interested in taking part in research related to autism. To help with this we are building a research register. The register will hold the names of people interested in taking part in research related to autism.
What autism research are we doing in LPT?
Click the drop-down items
Many autistic adults experience anxiety and many find it very difficult to deal with. STRATA aims to find out if the medication sertraline is effective for treating anxiety in adults with a diagnosis of autism.
Medications like sertraline are often prescribed for anxiety in autistic adults but whether they work, and what their side effects are in the autistic population is not well known. By taking part in this study, you will be helping to inform whether autistic adults who experience anxiety should be prescribed sertraline.
You can find out more about the STRATA study by clicking the link here or you can have a look at the documents below:
STRATA Participant Information Leaflet
STRATA Participant Information Leaflet (Easy Read)
Depression is a common mental health problem that affects many people and is related to reduced quality of life. Research suggests that autistic people are more likely to experience depression than non-autistic people. Effective treatments for depression exist and include low-intensity cognitive behaviour therapy (CBT). CBT is a psychological (talking) therapy. Low-intensity refers to a form of CBT which supports people to use evidence-based information. This is often called ‘guided self-help’ (GSH).
Research shows that GSH can be helpful for depression for non-autistic adults, but it is not clear if it is also helpful for autistic adults.
The aim of the ADEPT-2 study is to find out if GSH is helpful in reducing depression experienced by autistic adults. The research aims to find out if GSH is a cost-effective treatment, if it represents good value for money for the NHS and if GSH has an impact on family carers and supporters of autistic adults.
You can find out more about the ADEPT-2 study by clicking the link here or you can have a look at the documents below:
ADEPT-2 Participant Information Leaflet
ADEPT-2 Participant Information Leaflet (Easy Read)
Please note that there may be a delay before we are able to send you further information about this study after you join the research register.
Who can join the research register?
We would like to invite adults (over the age of 18) with a formal diagnosis of autism to join the research register.
At this moment in time we are not running any studies for people without a formal diagnosis of autism. Our portfolio of autism research may change over time, this will be reflected on this website.
How to join the research register?
If you are interested in joining the Autism Research Register, please complete the registration form below. After receiving your registration form you will receive an email confirmation from lpt.researchdelivery@nhs.net. Approved members of the Research & Development (R&D) Team will then be in touch on your preferred method of contact.
Before joining the research register, you may choose to discuss with your family and/or friends about your decision to join and the studies LPT are currently running. If you have any questions you can refer to the ‘Frequently Asked Questions’ on this page. Alternatively, you can contact the Research and Development team (lpt.researchdelivery@nhs.net), and we will answer any questions you might have. You can unsubscribe from the research register at any time by visiting this page.
Frequently Asked Questions
- Will taking part in the research affect the care I am currently receiving or may receive in the future?
No. Taking part in research will not affect the care you are currently receiving or may receive in the future.
- Do I have to take part?
No. Taking part in research is your choice. - What if I decide I no longer want to take part?
You have the right to withdraw from the research study at any time, and this will not affect the care you are currently receiving or may receive in the future. - Where is the Research Register held?
The research register will be held on a secure computer drive. The database will be password protected.
- Who will have access to the Research Register?
Only the members of the Research and Development team will have access to the register.
- How long will my data be held?
After 12 months (annually) we will email people who have signed up to ask if you would like to stay on the register. You can get in touch with us at any time if you would like your details removed from the register or complete the form here, you do not need to wait until we contact you.
If there is anything else you would like to find out before joining the register please contact the Research and Development team on lpt.researchdelivery@nhs.net